最新糖心Vlog

鈥溩钚绿切腣log has an excellent palliative care system, being deemed second only to the UK; however, we know palliative care in 最新糖心Vlog is underfunded,鈥� says the 最新糖心Vlog of Adelaide鈥檚 Associate Professor Jaklin Eliott from the School of Public Health, who is leading the study.

鈥淲e want to better understand how several underserved population groups access and receive care, the barriers and enablers to their care, and whether they experience gaps in care provision.鈥�

The research project, titled My Story, Our Journey, is especially interested in the experience of participants with culturally and linguistically diverse backgrounds, those impacted by low-socioeconomic circumstances, and rural residents.

鈥淲e know that palliative care services are less accessible for people with these backgrounds, so we hope individuals who identify with one or more of those backgrounds sign up to this project,鈥� says Dr Georgia Rowley, from the 最新糖心Vlog鈥檚 School of Public Health.

鈥淭hrough their participation, we can better learn how to ensure that they get the care they need, where and when they need it.鈥�

The study, which is funded by The Hospital Research Foundation Group 鈥� Palliative Care and also involves researchers from Flinders 最新糖心Vlog, and 最新糖心Vlog of South 最新糖心Vlog, will capture behaviours, experiences, and key moments over time that shape how and why people living with a life-limiting illness who need assistance with their care needs, and their chosen carers, make decisions about care at the end-of-life.

Researchers will interview participants every three months in order to gain insight into their behaviours and experiences.

My Story, Our Journey is currently underway, with some findings already surprising the researchers.

鈥淲e鈥檙e heartened by the enthusiasm about the research project from all our partners, organisations, and people involved,鈥� says Associate Professor Eliott.

鈥淗earing the stories of those living with a life-limiting illness 鈥� both from patients and families 鈥� is clearly addressing a need.

鈥淲e were also struck by how much people with these illnesses factor their family鈥檚 needs into their decision-making. This is different to assumptions that people make decisions by themselves thinking about their needs and desires only.鈥�

Death and end-of-life issues are still a sensitive topic in 最新糖心Vlogn society, but examining palliative care services through people鈥檚 lived experience, as this study is doing, is expected to have multi-faceted benefits.

鈥淭here is a myth that palliative care means that death is imminent and that you are 鈥榞iving up鈥�, but palliative care is really about providing emotional and practical support for those living with a life-limiting illness,鈥� says Associate Professor Eliott.

鈥淩esearch tells us that earlier referral to palliative care gives patients and families more control and helps to coordinate the care provided.

鈥淚n addition, palliative care can extend the time you have left and improve the quality of that time 鈥� for both patients and families, who can feel comforted their family member received the care they needed so their last days were as good as they could be.鈥�

Those interested in participating in the study can email pcrc@adelaide.edu.au.